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talk icon NHL Follicular, not staged yet

  • Seattlesubee's Avatar 1
    I would really like to find some new friends who have been diagnosed with NHL Follicular.
  • support1's Avatar 2
    I was diagnosed with non-hodgkin's lymphoma about a year ago. I have follicular lymphoma and was recently diagnosed with B cell.
  • Seattlesubee's Avatar 3
    Support1,
    Thanks for your response. So do you mean that your lymphoma has changed from indolent to aggressive? My doc said that he thinks mine is likely indolent. But I won't know for sure until I speak with him on Friday. Today I had several CT scans. The banana flavored barium tasted okay, not as expected.
  • support1's Avatar 4
    Seattlesubee,
    Yes, mine started out as indolent and transformed. A small percentage of them do. I was treated with benamustine and retuximab for my follicular lymphoma. Let me know what you find out.
    Good luck!
  • S21299f's Avatar 5
    I have agressive follicular, and I start chemo tomorrow morning.
  • S21299f's Avatar 6
    Did you handle the treatment well? My main concern is how I'm going to handle the treatment, I have no idea what to expect.
  • support1's Avatar 7
    S21299f,
    What chemo treatment are you doing?
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